September 25th, Matthew lived.
September 26th, Matthew went home.
Imagine the roller coaster of emotion we were on. We had gone from finding out our son had Trisomy 13 and learning he wouldn't have much time with us, if any at all. To hearing the positive news at our Care Conference that, for a baby with Trisomy 13, Matthew had relatively few life threatening issues and he had every chance of going home with us. To going into labor a month early and not knowing if having him early would put him at higher risk. To giving birth to a rolly polly, 6lb 3oz, rosy pink, healthy little guy. Healthy except for the occasional failure to remember to breathe.
This is the part of the story that is hardest for me to share. Not because it's sad. It has it's sad moments. But more than that it is precious. It's the part of the story I treasure the most. Because it's the story of our private moments with Matthew. It's the part of the story that only we know. And as hard as those moments were, they were also my favorite moments with him. Because it was in those moments that I felt closest to him. And in those moments I was surrounded by saints and angels. Those were the moments when all the prayers, the hundreds if not thousands of people praying for our Matthew, those prayers surrounded us and held us. They carried us through.
But if I really want to tell his story, I have to share these moments with you. Because the story is not complete without them. I want you to know my son as I knew him. And without the chance to introduce him to you in person, this is the next best thing.