Trisomy 13


Resources


What is Trisomy 13?

What Should We Do Now? - Necessary Information After a Diagnosis of Trisomy 18 or Trisomy 13.

Prenatal Partners for Life - Support information and encouragement for carrying to term with an adverse prenatal diagnosis and support for raising your child with special needs after birth

All That Love Can Do - Support for families who continue their pregnancy after a fatal diagnosis.

Special Needs - Living with Trisomy 13

Perinatal Hospice

Birth Plan Template

Now I Lay Me Down to Sleep - Free Remembrance Photography

NILMDTS - Trisomy Video

Organizations

SOFT - Support Organization for Trisomy 18, 13 and related disorders

Living with Trisomy 13

Hope for Trisomy 13 and 18

Noah's Never Ending Rainbow

The Global Genes Project rare and genetic disease patient advocacy

Stories

Matthew

Dancing on Ice's Nicky Slater

Choosing Thomas video - Inside a family's decision to let their son live, if only for a brief time

Perinatal hospice: A Fruitful Story

Avonlea

Books

The Gift of Time

Gift of a Lifetime

Grief Support

Miss Foundation - A community of compassion and hope for grieving families

Still Standing online Magazine - embracing life after loss and infertility

Camp Sol

Raising Arrows - The Grieving Mother

White Signs of Grief

Keepsakes/Memorials

Trisomy Angels Memorial

Eva's Gift

The Comfort Company

October 15th - Pregnancy and Infant Loss Remembrance

Carly Marie Project Heal

Butterfly Footprints

Lost for Words Calendar

Trees for a Change.com

Awareness

March is Trisomy Awareness Month  (March 13th is Trisomy 13 awareness day)

The Tracking Rare Incidence Syndromes (TRIS) Project: What It Is and What It Is Not

End "Incompatibility with life" a judgment call not a diagnosis

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